{"id":96793,"date":"2005-06-16T00:00:00","date_gmt":"2005-06-16T05:00:00","guid":{"rendered":"https:\/\/alpha.pewresearch.org\/pewresearch-org\/2005\/06\/16\/informed-patients\/"},"modified":"2024-04-14T04:18:02","modified_gmt":"2024-04-14T09:18:02","slug":"informed-patients","status":"publish","type":"post","link":"https:\/\/alpha.pewresearch.org\/pewresearch-org\/internet\/2005\/06\/16\/informed-patients\/","title":{"rendered":"Informed Patients"},"content":{"rendered":"

Laura Landro\u2019s column in the Wall Street Journal on 6\/15\/05 highlighted an upcoming service called patientINFORM<\/a>, which will create a one-stop shop for summaries of medical journal articles. Our research<\/a> has shown that millions of Americans will welcome this access to industrial-strength health information. The first three organizations sponsoring it are the American Cancer Society<\/a>, the American Diabetes Association<\/a>, and the American Heart Association<\/a>, which have versions of the new service on their sites now. Landro reports that two dozen publishers are participating \u2013 but not the Journal of the American Medical Association, one of the 800-pound gorillas of the genre. Their position is that they already have a consumer-oriented page<\/a> so there is no need to make it any easier for people to find their article summaries. <\/p>\n\n

I was curious about the differences between the services, so I pretended to be searching for diabetes research. I first went to the ADA\u2019s site and found their patientINFORM page<\/a> which had 15 articles just about blood glucose control. Then I went to JAMA and found their collection of 106 diabetes articles<\/a>, but the full text versions are available only to subscribers and the collection does not include a link to any \u201cPatient Pages\u201d that I could see. I did stumble on a PDF of the JAMA Patient Page associated with a 2002 special issue on diabetes, helpfully entitled, \u201cThe ABCs of Diabetes.\u201d<\/a> It\u2019s one page long \u2013 quite a bit different from the content available to subscribers or to internet users savvy enough to go to the patientINFORM sites.<\/p>","protected":false},"excerpt":{"rendered":"

Millions of Americans will welcome new access to industrial-strength health information — but they’ll miss the articles from one major 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