{"id":96223,"date":"2008-06-15T00:00:00","date_gmt":"2008-06-15T05:00:00","guid":{"rendered":"https:\/\/alpha.pewresearch.org\/pewresearch-org\/2008\/06\/15\/information-therapy-conference\/"},"modified":"2024-04-14T04:17:53","modified_gmt":"2024-04-14T09:17:53","slug":"information-therapy-conference","status":"publish","type":"post","link":"https:\/\/alpha.pewresearch.org\/pewresearch-org\/internet\/2008\/06\/15\/information-therapy-conference\/","title":{"rendered":"Information Therapy Conference"},"content":{"rendered":"

The Information Therapy conference <\/a>just ended on Friday and my head is buzzing with a few favorite moments:<\/p>\n\n

1) Josh Seidman<\/a>‘s speech connecting our venue, the Newseum<\/a>, to his mission by talking about the history of the U.S. press, mail system, and medicine: the Pony Express was viewed as so democratic that it was almost subversive.<\/p>\n\n

2) Bill Kormos talking about Mass General’s program for snail-mailing(!) VHS and DVD informed-decision-making<\/a> videos. Dr. Kormos said it has been a challenge to get doctors to tell patients about them. I suggested that they put all the videos up on YouTube and let patients and their families drive the demand, but it turns out all the content is proprietary. Too bad — the advanced directive one sounds interesting.<\/p>\n\n

3) Carolyn Pare<\/a> bluntly saying that we should not only look at health policy, but agriculture policy and tax policy — there are many forces at work to create this health crisis.<\/p>\n\n

4) David Bradley<\/a>‘s personal story about tracking down the answer to his mysterious ailment thanks to an obscure e-patient community site (after spending big bucks on research and consultations up and down the East Coast).<\/p>\n\n

5) Neil Calman<\/a>‘s prediction that internet access will continue to penetrate the underserved community as Latino and African immigrants go online to keep in touch with relatives back home.<\/p>\n\n

This was especially important for me to hear since my remarks focused on Josh Seidman’s question, “Are people ready for patient-centered health IT?” The answer is yes, with an asterisk.<\/p>\n\n

I talked about how there are pockets of non-internet users, just as there are pockets of people who do not have a home phone. As Penn State scholar Jorge Reina Schement<\/a> wrote in 1996, and it is still true today: “Isolation is not distributed randomly; rather, it is concentrated in certain groups so that they suffer its consequences with intensity.”<\/p>\n\n

In addition to the classic low-access demographics, health status is also a significant factor in predicting internet use. If we included living with a chronic condition in the thermometer of access, that group would fall at around the 50% mark, whereas adults with no disability or chronic illness fall around the 75% mark.<\/p>\n\n

And yet, once online, people living with chronic conditions are just as likely to use the internet to gather and share health information as other internet users. A serious diagnosis can be a factor in low access to technology, but not necessarily low interest in health information.<\/p>\n\n

Join the discussion at e-patients.net<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

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