{"id":95700,"date":"2010-05-11T00:00:00","date_gmt":"2010-05-11T05:00:00","guid":{"rendered":"https:\/\/alpha.pewresearch.org\/pewresearch-org\/2010\/05\/11\/frequently-asked-but-unanswered-questions-about-e-patients\/"},"modified":"2024-04-14T04:17:43","modified_gmt":"2024-04-14T09:17:43","slug":"frequently-asked-but-unanswered-questions-about-e-patients","status":"publish","type":"post","link":"https:\/\/alpha.pewresearch.org\/pewresearch-org\/internet\/2010\/05\/11\/frequently-asked-but-unanswered-questions-about-e-patients\/","title":{"rendered":"Frequently Asked (But Unanswered) Questions About E-Patients"},"content":{"rendered":"<p class=\"wp-block-paragraph\">As I&#8217;ve written <a href=\"http:\/\/e-patients.net\/archives\/2009\/11\/the-pew-internethealth-faq.html\" target=\"_blank\" rel=\"noopener noreferrer\">before<\/a>, I love questions. It&#8217;s an honor to be handed someone&#8217;s nascent idea and to help them shape it (which is what I think a question really is). But this time I&#8217;m asking for <b>YOUR<\/b> input.<\/p>\n\n<p class=\"wp-block-paragraph\">These excellent questions were sent to me by Liav Hertsman and his colleagues at Tel Aviv University, who hoped that I had all the answers.<\/p>\n\n<p class=\"wp-block-paragraph\"> <b>If only.<\/b> <\/p>\n\n<p class=\"wp-block-paragraph\">I can tackle the first one <a href=\"https:\/\/alpha.pewresearch.org\/pewresearch-org\/internet\/Reports\/2009\/8-The-Social-Life-of-Health-Information.aspx\">on my own<\/a>, but I need help with the others. <b>If you have any tips to share &#8212; observations, journal articles, researchers interested in similar questions &#8212; please add them in the <a href=\"http:\/\/e-patients.net\/archives\/2010\/05\/frequently-asked-but-unanswered-questions-about-e-patients.html#comments\" target=\"_blank\" rel=\"noopener noreferrer\">comments on e-patients.net<\/a>.<\/b><\/p>\n\n<p class=\"wp-block-paragraph\">1. How would you describe the typical online active e-patient in terms of demographics?<br>2. In which stages of the diseases do e-patients usually need medical information the most? Why?<br>3. In which stages do they search for information about drugs?<br>4. How substantial is the e-patients&#8217; drug search\u00a0in comparison with their overall search about health?<br>5. How dominant and reliable is user-generated content (UGC) information in the eyes of e-patients?<\/p>\n\n<figure><img decoding=\"async\" alt=\"\" title=\"More...\" src=\"http:\/\/e-patients.net\/wp-includes\/js\/tinymce\/plugins\/wordpress\/img\/trans.gif\"><\/figure>\n\n<p class=\"wp-block-paragraph\">6. Do e-patients who are interested in UGC also tend to cross-check the information, using professional sites or do they tend to rely solely on the UGC? Why?<br>7. What do the e-patients value more, specific information or general information? Is it treatment stage related?<br>8. In your opinion, should a health site offer diverse information or focus only on one area of expertise? Why?<br>9. What tools are important to have on a health site (i.e. communities, experts&#8217; reviews, doctors&#8217; ratings, drugs&#8217; ratings, etc.)? Should a health site offer several tools? Why?<br>10. Do e-patients prefer a one-stop-shop site, where they can find every information related to health and every tool they need, or do they prefer to gather information from several sites, each with a specific specialization?<br>11. What causes an e-patient to return to a specific health site?<\/p>","protected":false},"excerpt":{"rendered":"<p>As I&#8217;ve written before, I love questions. It&#8217;s an honor to be handed someone&#8217;s nascent idea and to help them shape it (which is what I think a question really is). But this time I&#8217;m asking for YOUR input.<\/p>\n","protected":false},"author":78,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"sub_headline":"","sub_title":"","_prc_public_revisions":[],"_ppp_expiration_hours":0,"_ppp_enabled":false,"ai_generated_summary":"","_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"relatedPosts":[],"reportMaterials":[],"multiSectionReport":[],"package_parts__enabled":false,"package_parts":[],"_prc_fork_parent":0,"_prc_fork_status":"","_prc_active_fork":0,"datacite_doi":"","datacite_doi_citation":"","_prc_seo_qr_attachment_id":0,"spoken_article_player_enabled":true,"displayBylines":true,"footnotes":"","prc_watchers":[],"jetpack_post_was_ever_published":false},"categories":[105,267],"tags":[],"bylines":[976],"collection":[],"datasets":[],"level_of_effort":[],"primary_audience":[],"information_type":[],"_post_visibility":[],"formats":[458],"_fund_pool":[],"languages":[],"regions-countries":[],"research-teams":[526],"workflow-status":[],"class_list":["post-95700","post","type-post","status-publish","format-standard","hentry","category-health-policy","category-medicine-health","bylines-susannah-fox","formats-report","research-teams-internet"],"label":false,"post_parent":0,"word_count":313,"canonical_url":"https:\/\/alpha.pewresearch.org\/pewresearch-org\/internet\/2010\/05\/11\/frequently-asked-but-unanswered-questions-about-e-patients\/","art_direction":false,"_embeds":[],"watchers":[],"table_of_contents":[],"report_materials":"","report_pagination":{"current_post":null,"next_post":null,"previous_post":null,"pagination_items":[]},"parent_info":{"parent_title":"Frequently Asked (But Unanswered) Questions About E-Patients","parent_id":95700},"materialsOrdered":[],"chaptersOrdered":[],"partsOrdered":[],"partsEnabled":false,"datacite_doi":"","prc_seo_data":{"title":"Frequently Asked (But Unanswered) Questions About E-Patients","description":"As I've written before, I love questions. 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