---
"title": "Participatory Medicine at NIH"
"description": "I always suspect that audience members have as much to share as I have to say. So when Mary Madden and I received an invitation to speak at the Na..."
"date": "2008-06-23"
"authors":
  -
    "name": "Susannah Fox"
    "job_title": "Former Researcher"
    "link": "https://alpha.pewresearch.org/pewresearch-org/staff/susannah-fox/"
"url": "https://alpha.pewresearch.org/pewresearch-org/internet/2008/06/23/participatory-medicine-at-nih-2/"
"categories":
  - "Emerging Technology"
  - "Health Policy"
  - "Medicine & Health"
---

# Participatory Medicine at NIH

I always suspect that audience members have as much to share as I have to say. So when [Mary Madden](https://alpha.pewresearch.org/pewresearch-org/internet/PPF/a/108/about_staffer.asp) and I received an invitation to speak at the [National Institutes of Health](http://www.nih.gov/) we created a participatory talk about participatory medicine: 35 minutes of our findings; 45 minutes of discussion. It was a blisteringly hot day, so we ended up having 50 people in the room and about 50 more watching the [videocast ](http://videocast.nih.gov/Summary.asp?File=14547)from the cool of their offices on the NIH campus. The video is a little blurry, so I recommend treating it like a podcast and [downloading the slides](https://alpha.pewresearch.org/pewresearch-org/internet/PPF/r/246/presentation_display.asp) separately, but you might enjoy hearing how we wove together our research on [digital footprints](https://alpha.pewresearch.org/pewresearch-org/internet/PPF/r/229/report_display.asp), [Web 2.0](https://alpha.pewresearch.org/pewresearch-org/internet/PPF/r/189/report_display.asp), and [health](https://alpha.pewresearch.org/pewresearch-org/internet/PPF/c/5/topics.asp).

I’ve uploaded a sample of the excellent questions we were asked (and our attempts to answer them) at e-patients.net.